©2018 by Diane O'Leary, PhD.

POLICY CONTRIBUTIONS

 

PUBLIC COMMENT ON 

2019 DRAFT GUIDELINES FOR THE PREVENTION, DIAGNOSIS AND TREATMENT OF LYME DISEASE

Guidelines for management of Lyme disease from the Infectious Diseases Society of America are undergoing revision. As part of that process they've presented the draft for a period of public comment.  My comments primarily address specific material in the guideline about management of "chronic Lyme disease".  I have also suggested, as a general comment, that the guideline advances an attitude of hubris about management of patients with "chronic Lyme disease", because it fails to acknowledge the very serious risks that arise when poorly understood conditions are attributed to psychological causes in error.

August 2019

The global diagnostic coding manual, the ICD, has recently been revised.  In the new edition, ICD-11, the category of "Somatoform Disorders" will be replaced by the new category of "Bodily Distress Disorder".  During the revision process the WHO posted a draft and invited proposals that comment on changes. This proposal suggests that the new construct of "bodily distress disorder" should be rejected on ethical grounds. 

March 2017

Note: This proposal has been escalated for consideration by the Medical Science Advisory Committee

ETHICAL DECISION MAKING ABOUT CHRONIC LYME DISEASE

Video presentation and statement to UN Special Rapporteur on Health and Human Rights as a member of the Global Ad Hoc Committee on Health Equity in ICD-11 Borreliosis Codes.

June 2017

PROPOSAL: ETHICAL CLASSIFICATION OF ME/CFS

Public proposal at the Beta Draft for the new edition of the International Classification of Diseases (ICD-11).  "Benign myalgic encephalomyelitis" (ME) and "chronic fatigue syndrome" (CFS) remain classified in ICD-11 in the neurological category of "postviral fatigue syndrome", though without exclusions to ensure that ME will not be captured with criteria for the psychiatric condition of "bodily distress disorder" in the general ICD, or "bodily stress syndrome" in the ICD for primary care (which has not yet been finalized).

April 2018

COMMENTS ON PROPOSAL TO RECLASSIFY ME/CFS

Public comments at the Beta Draft for the new edition of the International Classification of Diseases (ICD-11), rejecting a proposal to reclassify ME/CFS under "signs and symptoms of musculoskeletal disorders".

April 2018

STAKEHOLDER COMMENTS ON NICE PROPOSAL NOT TO REVISE THE GUIDELINE FOR ME/CFS IN THE UK - IN COLLABORATION WITH THE COUNTESS OF MAR

Comments submitted to the National Institute for Health and Care Excellence on behalf of the coalition of ME/CFS organizations known as "Forward-ME", in response to the preliminary decision not to revise the current practice guideline. That decision has now been reversed, and revisions are underway.

July 2017

COMMENTS FOR HEARING ON FUNCTIONAL DISORDERS

Letter to the Health and Prevention Committee of the Danish Parliament on ethical concerns related to the Danish construct of “bodily distress syndrome”.  Criteria for "bodily distress syndrome" have now been recommended for inclusion in the new edition of the global ICD for primary care.

March 2014